These are a few of my favourite chromosome and genetic web sites. I hope that you find them as helpful as I have.

If you know of any other web sites, including personal stories, please e-mail me.

S.O.F.T. Australia

S.O.F.T. Ireland

S.O.F.T. UK

S.O.F.T. USA

 Chromosome Deletion Outreach

 Rare Disorders Alliance - UK

 MUMS - National Parent to Parent Network

 The Alliance of Genetic Support Groups

Rare Genetic Diseases in Children

The NSW Genetics Education Program

The National Organisation for Rare Disorders (NORD)

The Canadian Directory of Genetic Support Groups

UNIQUE - Rare Chromosome Disorder Support Group

Genetic Information and Parent Services (GAPS)

New Zealand Health and Disability Support Groups

National Parent to Parent (NPPSIS)

MARCH of Dimes

Genetic Education Centre

OMIM - On-Line Mendelian Inheritance In Man Data Base

 

 

 Rainbows Down Under - A simple explanation of trisomy

 Chromosome Deletion Outreach - A simple explanation of many of the different chromosome anomalies that can occurhttp://www.kumc.edu/gec/

 The Genetics of Cancer - Explains the differences in chromosome numbers

 The Genetics of Cancer - Explains the variations in the structure of chromosomes

 US Department of Health and Human Testing - Explains genetic testing

 The CaF Directory - Explains genetic inheritence

 ABC Lab Notes - Understanding the human genome project

 The Genetics Education Center - To find a genetics clinic in the USA

 The Genetics Education Center - A list of international professionals genetics education centres

 

 Butler Eagle

 Chromosome 1 Homepage

 Hannahs Haven

 

 

Marissa's Web Site

Chromosome 3 Deletion Registry

 

 

Stanford Human Genome Center

 Waisman Center Cytogenetics Laboratory

 Wolf-Hirschorn Syndrome - 4p- Parent Network

 

 

 

Human Chromosome 7 - GenLink

 The Chromosome 7 Project

 The Opitz Family Network

 

 

 

Chromosome 8 Studies

 Trisomy 8

8p Duplication Support Group
Genetics Center, Children's Medical Center, 1 Children's Plaza
Dayton, OH 45404
Phone:(513)226-8480 Contact: Faith Callis-Daley
Fax:(513)463-5325
Trisomy 8 Informal Support Group
E-mail: khallent@aol.com

 

 

9TIPS

 Chromosome 9 Homepage

 Support Group for Monosomy 9p-
43304 Kipton Nickle Plate Rd
La Grange, OH 44050
Phone:(216)775-4255 Contact: Jonathan Storr
 Support Group for 9p-
C/O Beverly Udell
675 N Round Table Drive
Las Vegas, NV 89110
(702) 453-0788

Human Chromosome 10 Mapping

 Distal Trisomy 10q Families

European 11q Network

 The International 11:22 Translocation Network

 11q deletion Syndrome - Jacobsen's Syndrome

 Chromosome 11 Genome Information

 The McDermott Center

  Chromosome 11 Deletion / WAGR Syndrome Support Group
C/O Anne Prusakiewicz
2063 Regina
Lincoln Park, MI 48146
Email:
TheMooZoo@aol.com

Human Chromosome 13 Project

 Rainbows Down Under

 Sean's Page (Partial T-13)

 Kelli

 Devon's Homepage

 Hannah's Homepage (T-13 mosaic)

 Colin's Story

  The Website of Jordan Ashley

 Inverted Duplication Exchange and Advocacy (IDEA)
R.D. #1, Box 260B
Thomasville, PA 17364-9768
Phone:(717)225-5229 Contact: Donna Bennett
Fax:(610)891-2062

 

Disorders of Chromosome 16 Foundation

 

Smith-Magenis Syndrome PRISMS

 

Rainbows From Down Under

 Chromosome 18 Registry and Research Society

 Honolulu Star Bulletin

 Tribune Review

 Laura's Website

 About Alex

 Umberto's Story

 The Story of Gerard

 Susanna's Page

 Evan's Page

 Joshua's Page

 Iona's Page

 Rachelle's Website

 Gracelyn's Website

 The Adam's Family

 Louise's Page

 Theodora's Story

 Carleigh's Corner

 Jackson's Page

 Kyndall's Page

 The Stories of Dominic (Cystic Hygroma) & Gareth (T-18)

 Bobbi's Page

 Dawn's Story

 Rose's Website

 Sarah's Story

  Matias from Chile (in Spanish)

Matias de Chile (en español)

 Our Angel Gabriel (T-18 with anencephaly)

  The Blaise Family Website

Human Chromosome 19

 

Ring 20 Chromosome Support Group (forming spring 1999)
Tracy and Paula Pritchard
155 Newell Ave
St. Clairsville, OH 43950
E-mail: tapritch@1st.net

 

Down Syndrome Research Foundation

 National Down Syndrome Society

 Mosaic Down Syndrome

 National Down Syndrome Congress

 Riverbend Down Syndrome Parent Support Group - Southwestern Illinois

 Down Syndrome Association

The Sanger Center

 The International 11:22 Translocation Network

 Chromsome 22 Central

 Velo-cardio-facial Syndrome Information Page (22q deletion)

 Velo-Cardio-Facial Syndrome Research Institute

 

X Chromosome Mapping Group

 Fragile X Association of Australia

 Links to X Chromosome Resources

 Klinefelter Syndrome

 Triplo X Syndrome

 Triple X - An Orientation Book

 Triple X Syndrome

 

 Message Board for XYY Syndrome

  XYY Syndrome

 XYY Syndrome - An Orientation Book

 

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