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Alex at 9 days of age. He weighed 1.9kgs or about 4 pound. |
| Alex at 4 months. |
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Alex at 7 months. He was still very very tiny as you can see and was barely eating enough to keep him alive. At this point I started devoting all my energy into getting some weight onto him. |
| Alex at 14 months following his surgery for a g-tube, fundoplication and the correction of his bowel malrotation. Alex was a reasonable weight finally at this point, still tracking below the third centile though. Feeding him was taking 8 full hours out of our day - way too long. |
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Alex helping me give him a bolus tube feed |
| Alex with the Foley's catheter - what a
disaster!!
A Foley's catheter was not designed as a feeding tube and they didn't even bother to use one that anchored with a balloon. Instead the tube is held in place with a "H" dressing and its very easy to pull the tube out. The only infection that Alex ever had was as a result of this tube being partially pulled out and food entering into the tissue. The tube was made of latex and it was what sensitised him to latex. As a result he is now anaphylactic to latex. |
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Alex with his Mic-Key Button |
| Granulation tissue, this button is obviously too long for the stoma |
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Alex at the age 11. He is now an oral eater and in the 95th centile for height and weight. He is 153 cm (5' 1/2") and 43 kgs (or about 94 pounds). He still has the tube but doesn't use it for eating on a regular basis. |