Early in 1996 a young boy in Sydney was diagnosed with mosaic Trisomy 18. After reading the bleak medical information on the syndrome his mother was desperate to contact other families and share experiences. Sadly after approaching all the available Australian networks she found very little. Eventually she turned her search to possible contacts overseas.

 

Finally with the help of a few wonderful Optus operators she was able to make contact with a support group in the U.S.A. - SOFT. After receiving a "welcome package" which included much valued information and stories of other families, she turned to the newsletter and read of another Australian family. By phone over the next few months they shared with each other their heartache and hope. Slowly the feelings of isolation disappeared, healing began and the idea and dream of a national Australian support group was planted in their minds.

 

Together they approached S.O.F.T. USA and S.O.F.T. UK about starting an Australian Group.

 

In November 1996 the two families gathered together in Sydney with the aim of starting S.O.F.T. Australia. That very day while sitting together they received a phone call from another family.

 

From such modest beginnings S.O.F.T. Australia has grown and continues to grow, in every state of Australia. The dream of families no longer needing to feel alone, is becoming a reality.

 

The First Meeting of SOFT Australia
November 1996

L to R Jonathan Pass; Tracey Pass, Jennifer Pass; Mandy Schuler; Alexander Schuler (T-18M); Jesse Pass; David Pass.

 

Sydney 1997

 

Melbourne 1998

 

Perth 1998

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
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While all care has been taken the information contained in this web site is not written by a medical professional and as such should not replace the valuable and personal information of your own health care professionals. SOFT does not promote or recommend any specific therapy, treatment or course of action. SOFT is an independent organisation and does not support any particular political or religious point of view. Individuals or organisations referred to, do not necessarily endorse this publication or the views of SOFT.

If you have any comments about this web site please send an e-mail to:
softaus@optushome.com.au

  Visitors since 28th October 2004


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